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How Broad Categories Like Autoimmune Impact Patient Experience

Photo: CC0 Public Domain

When your disease is hard to name and doesn’t have visible symptoms, it can be hard for others to understand that you are sick. And, when people don’t know much about your disease, it can be hard to explain it to family and friends.

This sentiment is particularly true for the some 50 million people in the United States living with autoimmune diseases, like lupus or multiple sclerosis (MS)  — where the condition is chronic but achieving a specific diagnosis may take time, the diagnosis may change, symptoms may not be overtly apparent ...